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A resolution expressing support for the designation of September 2025 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Expressing support for the designation of September 2025 as ``Sickle Cell Disease Awareness Month'' in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Summary
- Expresses Senate support for designating September 2025 as "Sickle Cell Disease Awareness Month"
- Encourages people in the United States to hold programs, events, and activities during the month to raise awareness about sickle cell disease, treatments, and preventative care
AI-generated plain-language summary of the bill text — neutral, and may be imperfect. See the full text below for the exact wording.
Sponsor (1)
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Sen. Scott, Tim (R-SC)
7 cosponsors
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Sen. Booker, Cory A. (D-NJ) -
Sen. Hyde-Smith, Cindy (R-MS) -
Sen. Klobuchar, Amy (D-MN) -
Sen. Lankford, James (R-OK) -
Sen. Padilla, Alex (D-CA) -
Sen. Warnock, Raphael G. (D-GA) -
Sen. Warren, Elizabeth (D-MA)
Actions (2)
- Sep 19, 2025 Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S6798; text: CR S6795) · senate
- Sep 19, 2025 Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.
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Text versions (1)
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Full text
IN THE SENATE OF THE UNITED STATES
September 19 (legislative day, September 16), 2025
Mr. Thune (for Mr. Scott of South Carolina (for himself, Mr. Booker, Mr. Lankford, Mr. Padilla, Mrs. Hyde-Smith, Ms. Warren, Ms. Klobuchar, and Mr. Warnock)) submitted the following resolution; which was considered and agreed to
RESOLUTION
Expressing support for the designation of September 2025 as “Sickle Cell Disease Awareness Month” in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.
Whereas sickle cell disease (referred to in this preamble as “SCD”) is an inherited blood disorder that is a major health problem in the United States and worldwide; Whereas SCD can result in multiple medical complications, including anemia, jaundice, gallstones, strokes, restricted blood flow, damaged tissue in the liver, spleen, and kidneys, and death; Whereas SCD causes acute and chronic episodes of severe pain; Whereas SCD affects an estimated 100,000 individuals in the United States; Whereas approximately 2,000 babies are born with SCD each year in the United States, with the disease occurring in approximately 1 in 365 newborn Black or African American infants and 1 in 16,300 newborn Hispanic- American infants, and can be found in individuals of Mediterranean, Middle Eastern, Asian, and Indian origin; Whereas more than 2,000,000 individuals in the United States have the sickle cell trait and 1 in 13 Black or African Americans carries the trait; Whereas there is a 1 in 4 chance that a child born to parents who both have the sickle cell trait will have the disease; Whereas the life expectancy of an individual with SCD in the United States is often severely limited, with some estimates showing a shortened life expectancy by 20 years; Whereas sickle cell anemia is a common cause of childhood stroke, and in 2019, fewer than half of children with sickle cell anemia who were 2 to 16 years old received the recommended screening for stroke; Whereas, in 2019, only 2 in 5 children with sickle cell anemia who were 2 to 9 years old used recommended medication that can prevent sickle cell anemia complications; Whereas, in 2020, the National Academies of Science, Engineering, and Medicine developed a comprehensive strategic plan and blueprint for action to address sickle cell disease, which, among other things, cited the need for new innovative therapies and promoting widespread patient access to approved treatments; Whereas, in 2023, hematopoietic stem cell transplantation (commonly known as “HSCT”) was the only cure for SCD, and the Food and Drug Administration has since approved 2 gene therapies that have been demonstrated to cure SCD; Whereas more research is needed to find more treatments and cures to help individuals with SCD; Whereas the Centers for Medicare & Medicaid Services has introduced an innovative cell and gene therapy access model for interested States and United States territories, where it will support administration and outcomes-based contracts with drug manufacturers for Medicaid beneficiaries to receive these life-saving breakthroughs; and Whereas September 2025 has been designated as “Sickle Cell Disease Awareness Month” in order to educate communities across the United States about SCD, including early detection methods, effective treatments, and preventative care programs with respect to complications from SCD and conditions related to SCD: Now, therefore, be it Resolved, That the Senate—
(1) supports the goals and ideals of Sickle Cell Disease Awareness Month; and
(2) encourages the people of the United States to hold appropriate programs, events, and activities during Sickle Cell Disease Awareness Month to raise public awareness of the sickle cell trait, preventative care programs, treatments, and other patient services for those suffering from sickle cell disease, complications from sickle cell disease, and conditions related to sickle cell disease. <all>
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