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Candis King Hope for Sickle Cell Families Act
To direct the Secretary of Health and Human Services to carry out a program under which the Secretary will collect data with respect to sickle cell disease in the United States, and for other purposes.
Summary
The bill establishes a Sickle Cell Data Collection program through the Centers for Disease Control and Prevention (CDC) to gather comprehensive data on sickle cell disease in the United States. The program will award grants to states to collect and maintain data on the incidence, prevalence, and demographics of sickle cell disease, as well as track healthcare utilization patterns for individuals living with the condition. States will collaborate with the CDC and other grantees to standardize methods for sickle cell disease surveillance and monitoring. The bill authorizes $10 million annually for fiscal years 2027 through 2031 to support the program. The bill also directs the Secretary of Health and Human Services to reinstate employees of the CDC's Division of Blood Disorders and Public Health Genomics who were removed on or after January 1, 2025, as part of agency actions that resulted in the removal of 3 percent or more of the division's workforce within a 60-day period.
AI-generated plain-language summary of the bill text — neutral, and may be imperfect. See the full text below for the exact wording.
Sponsor (1)
Actions (2)
- Mar 24, 2026 Referred to the House Committee on Energy and Commerce. · house
- Mar 24, 2026 Introduced in House
Similar bills (6)
Bills with similar text or summary — includes reintroductions across Congresses. Ranked by semantic similarity of the bill text (computed locally); a neutral discovery aid, not a claim the bills are duplicates.
Full text
IN THE HOUSE OF REPRESENTATIVES
March 24, 2026
Mr. Vindman introduced the following bill; which was referred to the Committee on Energy and Commerce
A BILL
To direct the Secretary of Health and Human Services to carry out a program under which the Secretary will collect data with respect to sickle cell disease in the United States, and for other purposes.
Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the “Candis King Hope for Sickle Cell Families Act”.
SEC. 2. SICKLE CELL DATA COLLECTION PROGRAM.
(a) In General.—The Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (in this Act referred to as the “Secretary”), shall carry out a program under which the Secretary will collect data on the incidence and prevalence of sickle cell disease in the United States, to be known as the Sickle Cell Data Collection program, through awarding grants to States for the following purposes:
(1) To collect and maintain data on sickle cell disease to gain a better understanding of the incidence and prevalence of sickle cell disease in the United States, the demographics of individuals in the United States living with sickle cell disease, and the healthcare utilization patterns of individuals in the United States living with sickle cell disease.
(2) To collaborate with other entities who received grants under the Sickle Cell Data Collection program of the Centers for Disease Control and Prevention (as in effect on the day before the date of the enactment of this Act) and the Centers for Disease Control and Prevention for purposes of increasing the standardization of methods for sickle cell disease surveillance.
(b) Authorization of Appropriations.—There are authorized to be appropriated to carry out the program referred to in subsection (a), $10,000,000 for each of fiscal years 2027 through 2031.
SEC. 3. DIVISION OF BLOOD DISORDERS AND PUBLIC HEALTH GENOMICS.
(a) In General.—The Secretary of Health and Human Services shall reinstate any covered employee of the Division of Blood Disorders and Public Health Genomics of the Centers for Disease Control and Prevention.
(b) Covered Employee Defined.—In this section, the term “covered employee” means an employee of the Division of Blood Disorders and Public Health Genomics of the Centers for Disease Control and Prevention who was removed on or after January 1, 2025, under any agency action (including any reduction in force conducted pursuant to subchapter I of chapter 35 of title 5, United States Code or any agency reorganization) that provides for the removal of 3 percent or more of the total number of employees at such Division within a 60-day period. <all>
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