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SB 33 IN
Passed One Chamber

Consumer genetic testing providers.

IN · session 2025 · Senate · bill

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Introduced Jan 8, 2025

Latest action (Mar 13, 2025) Representative Cash added as cosponsor

Summary

Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.

Sponsors (4)

6 coauthors / cosponsors

Action history (14)

  1. Jan 8, 2025 First reading: referred to Committee on Commerce and Technology · upper
  2. Jan 8, 2025 Authored by Senator Hunley · upper
  3. Jan 14, 2025 Senator Johnson T added as third author · upper
  4. Jan 14, 2025 Senator Buchanan added as second author · upper
  5. Jan 14, 2025 Senators Ford J.D. and Spencer added as coauthors · upper
  6. Feb 6, 2025 Senator Koch added as coauthor · upper
  7. Feb 6, 2025 Committee report: do pass, adopted · upper
  8. Feb 10, 2025 Second reading: ordered engrossed · upper
  9. Feb 11, 2025 Cosponsor: Representative Moed and Miller K · upper
  10. Feb 11, 2025 Third reading: passed; Roll Call 96: yeas 47, nays 2 · upper
  11. Feb 11, 2025 House sponsor: Representative Pierce K · upper
  12. Feb 12, 2025 Referred to the House · upper
  13. Mar 3, 2025 First reading: referred to Committee on Commerce, Small Business and Economic Development · lower
  14. Mar 13, 2025 Representative Cash added as cosponsor · lower
Subjects
CRIMINAL LAW AND PROCEDURE; DNA and FingerprintingHEALTH; Billing and CostsINSURANCE; Health InsuranceLABOR AND EMPLOYMENT; GenerallyLAW ENFORCEMENT; GenerallySTATE ELECTED OFFICIALS; Attorney GeneralTECHNOLOGY; Cyber Security, Data Privacy, and Identity Theft

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