HB 1521 IN Became Law
Consumer genetic testing providers.
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Summary
Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.
Sponsors (3)
- Kyle Pierce Republican · author
- Andrea Hunley Democratic · sponsor
- Tyler Johnson Republican · sponsor
6 coauthors / cosponsors
- Robert Morris Republican · coauthor
- Matt Commons Republican · coauthor
- Brian Buchanan Republican · cosponsor
- Eric Koch Republican · cosponsor
- J.D. Ford Democratic · cosponsor
- Mark Spencer Democratic · cosponsor
Action history (27)
- Jan 21, 2025 Coauthored by Representatives Morris and Commons · lower
- Jan 21, 2025 First reading: referred to Committee on Commerce, Small Business and Economic Development · lower
- Jan 21, 2025 Authored by Representative Pierce K · lower
- Feb 6, 2025 Committee report: amend do pass, adopted · lower
- Feb 10, 2025 Second reading: ordered engrossed · lower
- Feb 11, 2025 Third reading: passed; Roll Call 141: yeas 91, nays 0 · lower
- Feb 12, 2025 Referred to the Senate · lower
- Feb 11, 2025 Senate sponsors: Senators Hunley and Johnson T · lower
- Mar 3, 2025 First reading: referred to Committee on Commerce and Technology · upper
- Apr 3, 2025 Committee report: amend do pass, adopted · upper
- Apr 3, 2025 Senators Buchanan, Koch, Ford J.D., Spencer added as cosponsors · upper
- Apr 7, 2025 Second reading: ordered engrossed · upper
- Apr 10, 2025 Third reading: passed; Roll Call 383: yeas 42, nays 1 · upper
- Apr 11, 2025 Returned to the House with amendments · upper
- Apr 14, 2025 House dissented from Senate amendments · lower
- Apr 14, 2025 Motion to dissent filed · lower
- Apr 14, 2025 Senate conferees appointed: Johnson T and Hunley · upper
- Apr 14, 2025 Senate advisors appointed: Ford J.D., Buchanan and Koch · upper
- Apr 15, 2025 House advisors appointed: Morris, Commons and Dant Chesser · lower
- Apr 15, 2025 House conferees appointed: Pierce K and Miller K · lower
- Apr 23, 2025 Motion to concur filed · lower
- Apr 23, 2025 House reconsidered dissent and concurred with Senate amendments; Roll Call 529: yeas 92, nays 0 · lower
- Apr 29, 2025 Signed by the President of the Senate · upper
- Apr 24, 2025 Signed by the Speaker · lower
- Apr 24, 2025 Signed by the President Pro Tempore · upper
- May 6, 2025 Signed by the Governor · executive
- May 6, 2025 Public Law 233 · lower
Full text
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