SB 284 IN

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Passed One Chamber

Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.

• Andrea Hunley Democratic · author
• Tyler Johnson Republican · author
• Brian Buchanan Republican · author
• Kyle Pierce Republican · sponsor

1. Jan 16, 2024 Senator Johnson T added as second author · upper
2. Jan 16, 2024 Authored by Senator Hunley · upper
3. Jan 16, 2024 First reading: referred to Committee on Commerce and Technology · upper
4. Jan 25, 2024 Committee report: amend do pass, adopted · upper
5. Jan 29, 2024 Second reading: amended, ordered engrossed · upper
6. Jan 29, 2024 Senators Koch and Vinzant added as coauthors · upper
7. Jan 29, 2024 Senator Buchanan added as third author · upper
8. Jan 29, 2024 Amendment #1 (Hunley) prevailed; voice vote · upper
9. Jan 30, 2024 Third reading: passed; Roll Call 70: yeas 49, nays 0 · upper
10. Jan 30, 2024 Senator Becker added as coauthor · upper
11. Jan 30, 2024 Senators Niezgodski, Pol, Qaddoura, Randolph, Taylor G, Yoder, Ford J.D. added as coauthors · upper
12. Jan 30, 2024 Cosponsors: Representatives Miller K, Baird, Pryor · upper
13. Jan 30, 2024 House sponsor: Representative Pierce K · upper
14. Jan 31, 2024 Referred to the House · upper
15. Feb 6, 2024 First reading: referred to Committee on Commerce, Small Business and Economic Development · lower

The published texts of this bill as it moves through the legislature. Each links to the official document on the state legislature site. Data from OpenStates.

• Engrossed Senate Bill (H) · PDF
• Senate Bill (S) · PDF
• Introduced Senate Bill (S) · PDF