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Expressing support for the designation of May 17, 2025, as "DIPG Awareness Day" to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.

Expressing support for the designation of May 17, 2025, as ``DIPG Awareness Day'' to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.

Introduced May 15, 2025

Latest action (May 15, 2025) Referred to the House Committee on Energy and Commerce.

Policy area
Issues
Healthcare

Summary

This resolution expresses support for designating May 17, 2025, as DIPG Awareness Day to raise public awareness about diffuse intrinsic pontine glioma (DIPG), a pediatric brain cancer that affects 200 to 400 children in the United States annually with a median survival time of 9 months. The resolution notes that DIPG is the leading cause of childhood death due to brain tumors and that survival rates have not improved in over 40 years, and it encourages expanded research funding and public awareness about pediatric cancer research needs. The resolution also encourages public and private research funders to consider mortality rates and life-years lost as factors in evaluating grant applications for cancer research.

AI-generated plain-language summary of the bill text — neutral, and may be imperfect. See the full text below for the exact wording.

Sponsor (1)

Actions (2)

  1. May 15, 2025 Referred to the House Committee on Energy and Commerce. · house
  2. May 15, 2025 Submitted in House

Similar bills (6)

Bills with similar text or summary — includes reintroductions across Congresses. Ranked by semantic similarity of the bill text (computed locally); a neutral discovery aid, not a claim the bills are duplicates.

Full text

IN THE HOUSE OF REPRESENTATIVES

May 15, 2025

Mrs. Dingell (for herself, Mr. Joyce of Ohio, Mr. McCaul, Mr. Cohen, Mr. Quigley, Mr. McGovern, and Ms. Castor of Florida) submitted the following resolution; which was referred to the Committee on Energy and Commerce

RESOLUTION

Expressing support for the designation of May 17, 2025, as “DIPG Awareness Day” to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.

Whereas diffuse intrinsic pontine glioma (DIPG) affects 200 to 400 children in the United States each year with certain regularity; Whereas brain tumors are the leading cause of cancer-related death in children; Whereas DIPG is the second most common malignant brain tumor of childhood; Whereas DIPG is the leading cause of childhood death due to brain tumors; Whereas the median survival time of an individual with DIPG is only 9 months postdiagnosis with treatment; Whereas 5-year survival of an individual with DIPG is less than 1 percent; Whereas, given the age at diagnosis and the average life expectancy, the number of life years lost annually because of DIPG is approximately 24,000 years of person life lost (calculated as the number of children diagnosed by average of male and female life expectancy from that median age, 300 x 80 = 24,000 years of person life lost annually); Whereas prognosis has not improved for children with DIPG in over 40 years; and Whereas Federal funding for research for pediatric cancer should be increased to address the level of unmet medical need for this vulnerable population: Now, therefore, be it Resolved, That the House of Representatives—

(1) supports the designation of “DIPG Awareness Day”;

(2) encourages all people of the United States to become more informed about diffuse intrinsic pontine glioma (DIPG) pediatric brain cancer, and the current challenges to the medical research system in designating sufficient research funding for pediatric cancers;

(3) supports expanded research to better understand DIPG, develop effective treatments, and provide comprehensive care for children with DIPG and their families; and

(4) encourages public and private sources of research funding to elevate their consideration of the mortality rate of a type of cancer, as well as the life-years lost, as significant factors to be considered during the grant application process. <all>

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