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Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
Expressing support for the designation of May 2, 2025, as ``NKH Awareness Day''.
Summary
- Designates May 2, 2025, as "NKH Awareness Day"
- Supports raising public and medical community awareness of nonketotic hyperglycinemia (NKH), a rare genetic metabolic disorder
- Recognizes the importance of improving education about nonketotic hyperglycinemia
AI-generated plain-language summary of the bill text — neutral, and may be imperfect. See the full text below for the exact wording.
Sponsor (1)
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![Rep. Vindman, Eugene Simon [D-VA-7]](https://media.civicgate.org/people/d/politicians/V000138.thumb.jpg)
Rep. Vindman, Eugene Simon (D-VA) [#7]
1 cosponsor
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![Rep. Cline, Ben [R-VA-6]](https://media.civicgate.org/people/d/politicians/C001118.thumb.jpg)
Rep. Cline, Ben (R-VA) [#6]
Money behind the sponsor
Top reported contributors to Eugene Simon Vindman’s campaign committee (2024 cycle) — who funds the bill’s sponsor, not a claim about this bill. Data from FEC.
- Employer not reported $154,800
- COVINGTON & BURLING LLP $20,150
- ARNOLD & PORTER $15,500
- GOOGLE $13,625
- STATE OF CALIFORNIA $8,427
Organizations whose employees gave the most — itemized individual contributions grouped by the donor’s reported employer (FEC Schedule A). Full finance for Eugene Simon Vindman → · Outside spending →
Actions (2)
- May 5, 2025 Referred to the House Committee on Energy and Commerce. · house
- May 5, 2025 Submitted in House
Similar bills (6)
Bills with similar text or summary — includes reintroductions across Congresses. Ranked by semantic similarity of the bill text (computed locally); a neutral discovery aid, not a claim the bills are duplicates.
Full text
IN THE HOUSE OF REPRESENTATIVES
May 5, 2025
Mr. Vindman (for himself and Mr. Cline) submitted the following resolution; which was referred to the Committee on Energy and Commerce
RESOLUTION
Expressing support for the designation of May 2, 2025, as “NKH Awareness Day”.
Whereas a rare disease is defined as a disease that affects fewer than 200,000 people in the United States at any given time; Whereas children make up more than half of the estimated 25,000,000 to 35,000,000 people in the United States living with a rare disease; Whereas nonketotic hyperglycinemia (NKH) is a rare genetic metabolic disorder in which abnormally high levels of glycine build up in a patient’s body; Whereas NKH is also known as glycine encephalopathy; Whereas NKH affects approximately 1 in 76,000 people worldwide; Whereas NKH is caused by a mutation in the glycine cleavage enzyme system, meaning that patients cannot break down glycine, resulting in its accumulation throughout the body and especially in the spinal cord and brain; Whereas NKH has 2 forms, severe and attenuated NKH; Whereas most children born with NKH do not achieve typical developmental milestones, and those that do may lose these abilities over time; Whereas NKH may be diagnosed by a combination of a physical exam, biochemical testing, and genetic analysis; Whereas there are only approximately 500 cases of NKH diagnosed worldwide; Whereas 4 known patients living with NKH are in Virginia; Whereas Congress can raise awareness of NKH in the public and in the medical community of the United States; and Whereas increased awareness of NKH may result in increased research, participation in NKH patient registries, and diagnoses of NKH cases: Now, therefore, be it Resolved, That the House of Representatives—
(1) supports the designation of “NKH Awareness Day”; and
(2) recognizes the importance of raising awareness and improving education around nonketotic hyperglycinemia (NKH). <all>
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